When Paul was a toddler, he had a stroke that resulted in multiple medical needs. Paul was enrolled in Idaho’s Katie Beckett Medicaid, a special program for kids with disabilities. Medicaid is a critical lifeline for Paul as he grows and develops.
Paul’s parents received a devastating surprise this summer. Their four-year-old son with lifelong disabilities unexpectedly lost access to his weekly therapies, doctor appointments and a planned surgery – all services essential to Paul’s health and well-being. Medicaid is a critical lifeline as he grows and develops, but due to new bureaucratic red tape, Paul’s Medicaid coverage was terminated.
Idaho’s unnecessary bureaucratic red tape on Medicaid left Paul and his family out in the cold.
Thanks to you, we jumped into action this fall to address this disturbing new trend. We convened stakeholders, released a report, talked with the media and identified solutions to prevent other children from being dropped from coverage. However, we need your help to advance a permanent solution this winter. With your support, we can act.
Sadly, Paul’s experience is not unique.
We heard dozens of similar Idaho stories where – through no fault of the family – a child’s Medicaid coverage was unexpectedly terminated due to added barriers and more confusing systems. Last year, Idaho saw the largest rate increase of uninsured children in the nation. While Paul’s health care was thankfully restored, not every family will be successful in navigating a needlessly complex process.


